Scleroderma Angel Foundation Copywrite
This (document/video/web site/logo) including design, text, graphics, the selection and arrangement thereof, are Copywrite 2011 by Scleroderma Angel Foundation, Inc. (SAF). ALL RIGHTS RESERVED. Any use of materials including reproduction, modification, distribution or re-publication, without prior written consent of SAF is prohibited unless clearly attributed as “provided courtesy of Scleroderma Angel Foundation, Inc.
The Scleroderma Angel Foundation is a group of patients, loved ones, concerned citizens and providers dedicated to the goal of increased awareness of Scleroderma and related disorders. The aim is to promote awareness through education, and public discourse with an attitude of conviction and purpose that is essential to dealing with these extremely difficult disorders. Dr. Greg Borstad
Scleroderma is a chronic often progressive, disabling and sometimes fatal autoimmune disease.
Between 300,000 and 700,000 in the United States suffer from Systemic Scleroderma.
The cause of Scleroderma is unknown – there is no known cure.
Scleroderma Angel Foundation is a 501 (c) (3) nonprofit created for the patient and by the patient.
Our Vision: Bringing HOPE to all people affected by Scleroderma.
Our Mission: To educate and promote awareness of Scleroderma worldwide.
When the ocean is calm, the waves slam into the rocks/shoreline and as a storm rolls in, the waves become higher, pushed by angry fierce winds causing them to hit the rocks and shoreline with such force that over time it changes the rock and shoreline formations. This is what it feels like to live with Scleroderma; it can be calm for a period of time but still cause suffering and when the flare-ups occur, it can cause major suffering, physically,… mentally and emotionally until the waves of flare-ups subside once again for a varied amount of time. In the last 5 1/2 years of my 11 1/2 year journey with Scleroderma, the waves of flare-ups have been getting higher, more intense and more complicated. I seem to have more pain and suffering not less and most Scleroderma patients will agree that fighting Scleroderma is an uphill struggle. Yet, we will continue to have HOPE and FAITH by persevering and using SMS as needed! Keeping busy, reaching out to others and believing there is a light at the end of the tunnel helps me survive with Sweetheart, family, friends, church especially with an awesome Priest and Bishop in our life Angel hugs with the power of healing prayers