Events

June is World-wide Scleroderma Awareness Month. Wear Teal, donate time, money, expertise and help promote this rare, incurable often progressive and sometimes fatal autoimmune disease that strikes without warning. Scleroderma does NOT discriminate attacking any age, culture, male/female. Someone you know and or love may have this disease without knowing it. 90-95% of Scleroderma starts in the hands with Raynaud’s. Do your hands hurt, turn different colors when cold, do you have difficulty swallowing, suffer from heartburn and/or have unexplained weight loss? These could be symptoms of Scleroderma and should be seen by a doctor. For more information: www.sclerodermaangel.org

June 24, 2017  Saturday~”Kicking Butt 5k  Run/Walk in Redmond, Oregon’s Dry Canyon Trail at Sam Johnson Park

Registration at 8:00 am @ Sam Johnson Pavillion    Run/Walk starts at 8:30 am.

$20.00 in advance  $25.00 at Event Children 12 and under walk free with adult

Free water  Free food  Star Productions DJ  Dave Wilkins entertaining participants. Contact: mzannray@hotmail.com for registration form

 

 

4th of July Parade in Redmond Scleroderma Angel Foundation float

Scleroderma Angel Foundation (SAF) float took “3rd” place in the 2015 parade and was seen by thousands of people. Yay!

 

 

Mark your Calendars for 8th annual “Scleroderma patient conference on Saturday, October 21, 2017 with special guest Dr. Daniel Furst, world-renown Scleroderma specialist from UCLA

Click on highlight below to view flyer for conference.

saf2017patientconf.    

 

mzannray@hotmail.com

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5 Responses to Events

  1. Barbara Wadkins says:

    I’m over in Eugene, OR. Just came upon this site in Nov. 2013 and would like to find out about upcoming events. Anything on the horizon for the near future? Bend/Redmond isn’t too far away for me to travel to. Thanks for all you’re doing.

  2. Iden R. Rivera says:

    Hi, I would love to get more inforamtion about theScleroderma Angels. I was diagnosed about 9 years ago with scleroderma and it affected my skin very severely. Know that years are passing i could feel it affecting my lungs. I can not breathe normally and i am always short of breathe. Thank you and I hope to hear from you soon!!!!!!!!

    • Thank you for calling me this morning. If you are on facebook, we can be friends and I can add you to our Scleroderma Angel chat group. So sorry for your pain/suffering all these years. Angel hugs and healing prayers, Always, Ann Havelock

  3. Pingback: Events | Scleroderma Angel Foundation

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